Wednesday, March 15, 2006

day 264

so much has happened in the past few months, its difficult trying to figure out where to begin .. add the fact that i'm trying to type with numb fingers (a long term side effect from the chemo)

i need to thank my sister, Nancy for keeping y'all updated .. i still can't believe she'd take on that responsibility and i feel i owe her for keeping my friends updated (sorry, those aren't the exact words i want to use, but the words are not coming out the way i want them to)

my battle with brain tumors isn't over .. i had a 2 inch tumor removed and have a small inoperable tumor that remains .. monday i begin a series of radiation therapy (20 doses) there is a 30% chance that the tumor won't respond and will require additional radiation (referred to as "boosts")

friday i return to my oncologist office to figure out where to go from here .. my lung cancer hasn't responded to either the chemo or radiation .. the radiation had me so wiped out that i had to take a break and try to recover my strength .. it was then that the brain tumor started growing .. looking back, i was having side effects from the tumor which included the seizures, weight loss (i was down to 89 pounds), loss of balance (i kept falling down) .. and loss of strength and energy

i am keeping myself busy trying to find physical therapy that is covered by my insurance .. the doc also thinks i'll benefit from speech therapy .. so i've been trying to figure out my benefits and there are times that i become overwhelmed

i don't know if my sister Nancy told y'all but my son has moved back home to be with me .. he is taking a break from college (the university of hawaii) .. i get choked up every time i think about the sacrifices he's making for me .. he's taking care of me .. i am so proud of him, words can't begin to describe how i feel

oh, before i forget, i want to thank my chemo angel Erika for the flowers !!  i lost her email address so i couldn't let her know that i received the flowers yesterday .. thank you Erika :)

today i am going on my first outing .. i am going to get my eyes checked because i'm tired of not being able to see clearly .. Sears does the exam and only charges $65 (which i can afford) so i decided to throw caution to the wind the gather up the courage to go out in public .. my son will drive me and i'm scared to death .. i've decided to use the wheelchair i had my son buy me right before my 1st seizure .. i am nervous about going out in public when there is the chance that i'll have a seizure but they have me on medication to control the seizures (a side effect from the surgery and messing around with my brain)

oh, before i forget i've gained a lot of my weight back, weighing in at a whopping 102.5 pounds !!!  and i'm sore lol  i had no idea that i'd be this sore from simply moving around .. i am stiff and sore and you'd think i was working out instead of simply walking and moving around .. i can't wait until physical therapy starts hehe

well, i think i've done worn myself out by typing this little bit .. but i need to say one more thing .. thank you .. the support that i've received, the encouragement, words are failing me .. i can't begin to describe how much y'all mean to me .. i haven't quite figured out why i have so many friends who care so much about me but i've stopped trying to figure it out and i just want you to know how much your encouragement and support means to me (and i'm failing miserably at finding the words!) so THANK YOU  !!!!

42 comments:

Anonymous said...

((((((((((((((((((((Pam)))))))))))))))))  No doll...thank YOU.  You hav eno idea how you've blessed all of us.  Just glad to see you here again hon'. ;)  C.  http://journals.aol.com/gdireneoe/thedailies

Anonymous said...

It is so good to hear from you Pam.  You mean the world to us too...and we're all sending you every ounce of positive energy we can to help you fight this.

I'm glad your son is home.  Try and draw strength from all the love that surrounds you.  I'm thinking of you always!!


{{{{{{{{{{{{{{{{{{{{{{{{BIG HUG}}}}}}}}}}}}}}}}}}}}}}}}
Kat

Anonymous said...

You have so many friends because you are a wonderful caring person!  I am so happy for you that your son is with you.  You did good kid!  Have fun on your adventure to the eye doctor.  Get you some sexy new glasses!  It will be so nice to see clearly.  Shine on! Barbara

Anonymous said...

Pam, I think I can speak for all of us when I say it's so frustrating because we care so much and we're far away. If we were all within a close proximity you would have to tell us to stop bugging you I'm sure. I am thrilled that your son is there for you right now. I knew another woman who had brain tumors from lung cancer and they were able to do a procedure with a new tool called a "cyberknife". Perhaps you should ask your doctor to investigate that. Please know you are in my constant thoughts and prayers. I want to send a box to your p.o. box does your son pick that mail up for you? Hugs and healing thoughts, Nelle

Anonymous said...

Pam, thank you for allowing us to be a part of your life and to be able to pray for you!
Becky

Anonymous said...

So...we'll all keep praying, and you keep believing!!  You are a marshmallow...remember!!
~Meg

Anonymous said...

It makes my heart smile to know you are writing. You are in my thoughts though we dont know each other well. We dont have to. You have hundreds and hundreds of friends all over the world who care about you.
lisa jo

Anonymous said...

You are the one giving us hope!  Keep up the good work.  Keep eating and moving!  Praying some more.
Traci

Anonymous said...

Bless your son for taking the time to love his mother and to care for her!  We are all so happy you are writing and including us in this journey.  I thank you for letting me in.  Hugs.

Anonymous said...

What's with all the "y'alls?" Obviously, if you open up your head and have a part of your brain removed, you turn into a Texan...
-Paul

Anonymous said...

it's so very good to read your words, pam

blessings to you, and your son (and family)

stay strong while you stay also in our thoughts - -

xo phinney

Anonymous said...

You've had a rough couple of months...it is so nice that your son is coming to take care of you!  What a great kid!  I think it is good for you to get out, even if it is scary.  JAE

Anonymous said...

Pam we are just so happy you have you back ~ and Nancy did a good job keeping us updated on your progress ~ so glad your son has taken time out to be with you ~ and enjoy your first trip out ~ glad you have gained weight ~ thats a good sign  ~ and I pray that everything works out well for you ~ Ally

Anonymous said...

No, Pamela, THANK YOU for being the inspiration that you are.
Hugs & Prayers, always,
xo
Heather

Anonymous said...

I know it must be exhausting for you to type an entry like this one, and I just want to thank you for your efforts.  You bless us by keeping us "in the know" about how you're doing.

Anonymous said...

You seem to be doing better again. Just keep going in that direction :). You have been a real inspiration, Pam. Good luck with the eye doctor, and don't party there too long!

xoxo

Anonymous said...

Pam,

I am so glad to see you back to the point where you can even think of journaling again.  That is such a good sign considering the recent brain surgery.  I continue to hold you in my prayers.  I wish that I was closer, I would do your PT for free just to get you on your feet again.  

I have a saying over my desk that I look at to remind me of the important things...
Stop telling God how big your storm is; instead, tell the storm how big your God is!  

Sending you warm healing hugs,
Auntie Lyn (Lynda)

Anonymous said...

Pam!!!!!

You have no idea how much good it does my heart to hear your voice loud and clear in this entry...to hear your sense of humor ringing true.


You might think you don't have the words, but you do.  You do.


We get and we all love you tons.  Who said that internet friends can't love you?

Bahahahahhhh, they just don't know.


xxooxxoo

Anonymous said...

PS:   I just wanted to tell you that the word thing with brain surgery is normal and your fingers will get better....I've had brain surgery.  Keep the faith with that small part...   xxoo

Anonymous said...

I am so glad that you are back to journaling. I am also glad to hear your sense of humor in your journal. So glad that your son is with you.
You are in my thoughts and prayers.

Anonymous said...

Sweet Pam. It is SO GOOD to read a post from you, especially when I know how difficult it is. The fact that  you did it means so much to me, and to all who love you so much. You're in my prayers, hon, always.
Huge hugs,
Barb- http://journals.aol.com/barbpinion/HEYLETSTALK

Anonymous said...

I'm glad your doing better everyday!
Missie

Anonymous said...

I think your words sound perfect...

It's absolutely wonderful that your son has taken time of from college to care for his momma...says a lot about how you raised him.  

Good luck on the eye exam..I'm sure all will go smoothly.

Take care of yourself and get lots of rest!

XO,
bridgett

Anonymous said...

It is so good to hear from you.  
I think your son is one heck of a guy to come home to look after his mom!!!!!!Give him a hug for me.

Glad you are going to get your eyes checked.  It will do you some good to get out of the house.  I am sure everything will go ok.

Your sister, Nancy, was great to keep us informed!!!!  

Glad to see you are gaining weight!  You can have some of mine if you need it.  LOL

Take care, and keep posting!!!

Kathy

Anonymous said...

I am so happy to see you are back.  I am one who has followed your blog for many many months, and when suddenly things stopped... I didn't know if perhaps you'd stopped writing in it due to the problems with aol and blogs.  I wasn't aware of your sister's blog (and still don't have the info).  You are a true inspiration to me.  To see the strength you have, to read as you struggle through this disease.... with dignity, courage and resolve is inspiring to all who are blessed by your blog.  

God Bless you and keep you in his tender arms....
Angel from Florida.

Anonymous said...

Pam,

Sending you a {{{{{{Hug and a Prayer}}}}}}}}}}
Glad to hear from you.  :) :)
Love from, Molly

Anonymous said...

Pam, know it was hard to type using just one finger my dear, but thank you for letting us know how you are, where you go from here on your treatments, that you have gained weight and that you going out to have your eyes checked.

How wonderful you have your son there to help you through all of this, you've got one mighty special young man there.

Your sisters were wonderful in keeping us posted on how you were doing dear. All of us really appreciated them doing this.  

You don't have to thank us for caring about you dear, you've touched all of our hearts Pam, you are family to us.  And, we'll all be there every step of the way for you. Hugs from me to you.....AJ

Anonymous said...

Pam so good to hear you got out and that you are gaining some weight.  Wow, what your son has done is just amazing.  Of course we know he has to be great, cause I know his Mom.  You are a sweetie, take care and talk soon...john

Anonymous said...

It is so tremendous to engage in your words again, Pam.  Nancy did a terrific job, but you were sorely missed and worried over.  I wish you and your family well.  Take care!  best to ya!  Kris

Anonymous said...

You have no idea how lovely it is to see these words on my screen. I've been so worried about you! And, your son being home with you.... what wonderful medicine for you. Give him a big hug and our thanks for taking care of you.

Thank us? We should thank you! You are such an inspiration. Your strength and continued sense of humor in such a situation are just incredible.

{{{{{{{{Big Hugs}}}}} Hang in there kid... we luv ya!

Anonymous said...

Pam,
It is so wonderful just knowing that you are typing again. That is a major feat considering all you've been through the past few months.  And especially after just having brain surgery.  You've been on my mind every day.  Not a day goes by that I don't think of you.
I wish you health...a clean bill of it...and soon my friend.
Love you,
Connie

Anonymous said...

You are one great lady!

Anonymous said...

pam im so glad youre back..i was so worried...but the whole time you were "gone" i was thinking..dont worry..its pam..she'll fight thru it..and i guess i was right :-) keep fighting<3

Anonymous said...

actually, i think your typing improved with those numb fingers..

so glad you're back mah leetle marshmellow.

amazing and glorious - that's you.

and yes, you can let all of this go to your head -

you have extra room there now, remember....

kisses,
flora

Anonymous said...

Aw, Pam. It`s so nice to be talking with you again.  You are an amazing person. I`m so happy that your son is home with you.
Hugs,
V

Anonymous said...

I too am so happy to read your update. We were all so worried about you. Bless Nancy for caring enough about us to start her Group. Bless your Son for coming home to be with you. What a special gift.

Enjoy your outing with your Son. Take it easy and have fun.

Carolyn
http://journals.aol.com/shelt28/MyLife

Anonymous said...

(((((((((((HUGS)))))))  Glad that your son is home.  Love ya, Girl.  TerryAnn.

Anonymous said...

Bless you! You raised a good boy there! I will continue to keep you in my prayers.

Anonymous said...

It's very simple Pam. We are all family!

Anonymous said...

Hi Pam :)

It's so good to read a post from you! As the last commenter said, "We are all family here." :) Happy St. Patty's Day love.

Always, Carly :)

Anonymous said...

Aren't  J-Land friends wonderful ??? I know because they have been here for me too since my husband died in Jan. Pam I am praying for your recovery, and for God to shine his light on you and your wonderful son.
Love,
CArlene

Anonymous said...

Pam, for someone who thinks she can't find the 'words', you are finding them beautifully!  Just hearing from you.. just knowing that you are back with us, is the most wonderful gift any of us could imagine!  We all worried about you so much, and hung on and looked forward to any news that your sister Nancy would give us.
Now you are back.. and, while you may think you aren't making sense, sweetie, you make perfect sense!!  

You just keep fighting Pam... and we will keep praying, and being here for you!!

Gentle hugs and prayers,
Jackie